Jono Lancaster was born with a rare disorder called Treacher Collins Syndrome. This disorder is found in approximately 1 in 50,000 births. It is characterized by deformities of the genes that develop the facial bone and tissue, causing physical deformities. These malformations can range from minute to severe; in fact, there are many undiagnosed cases of Treacher Collins, because the abnormality is not severe enough. Jono was abandoned by his parents because of this. Today, he visits children from all over the world, who have been diagnosed with Treacher Collins. His ambition has been an inspiration to many of the children he visits.